Why us? Why now?

It is estimated that over 10% of Covid survivors will go on to develop some form of Long Covid. That’s not a small portion, and it will only grow as the virus continues to spread. As long haulers, we join billions of chronic illness survivors worldwide.

We believe that’s a community worth fighting for.

Our work and initiatives are guided by our core question; does this improve the quality of life of people living with chronic illness?

We aim to unite, support, and assist those with Long Covid and other chronic illnesses by providing

Compassion and Understanding

Read stories from others who walk this path, share your own experiences, and find solace in the shared journey.

Information and Insight

Access resources that shed light on the many facets of Long Covid, helping you to navigate both the known and the mysterious aspects of this condition.

Support and Solidarity

Engage with a community that listens, empathizes, and stands with you, offering a shoulder to lean on and hands to help you rise.

We are guided in spirit and in practice by our five guiding principles

  • Sustainability of mind, body, and mission

    We are working towards long-term goals, and need to pace ourselves, individually and collectively, to ensure that we have the energy to keep pushing. We know our worth is not tied to how much we can produce, and we remind ourselves and each other to slow down, take breaks, and move with reasoned purpose, not panic. Our efforts today have to make us more functional tomorrow, not less.

  • Fostering local communities globally

    While there are universal themes and patterns within our global community, there is no substitute for local connections and place-based knowledge and experiences. We do not seek to establish a one-size-fits-all model, but instead to join, support, and push forward a global movement of local communities working together to improve the lives of people in them. 

  • Education, awareness, and growth

    We hold that everyone has something to learn about chronic illness and disability. Public education and awareness is essential to fostering a culture that respects and recognizes sick and disabled folks as whole people, replacing sympathy, pity, and ignorance with compassion, understanding, and solidarity. At the same time, as folks with chronic illness we know that everyone's body/mind is different, and are committed to leading with curiosity in our own communities, never assuming anyone’s access needs or experiences.

  • Rethinking systems

    We know that we are all interdependent with our communities and environments. Our health is more than the sum of our individual decisions, and our health outcomes are directly reliant on the external systems we all interact with every day. We reject the notion that our illness is our fault, or that it is our responsibility to heal through it on our own. We hold that harm reduction that addresses individual needs is important, but strive to keep pushing forward to build a world where those individual interventions are no longer necessary.

  • “Nothing about us without us”

    We are committed to listening to, learning from, and following the voices of those most affected. We are experts on our bodies, and we know best what our needs are. It is only through the centering of folks with lived experience that we can create a world that “leaves no body behind.”